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4 LTC
Respect Oversight Advocacy Reform
for Long Term Care
a 501(c)(3) nonprofit organization
~ Ombudsman after screening "No Country
For Old People"
"It’s brutal. And it’s beautiful. Because it’s the truth."
Learning about people’s experiences of long-term care neglect and abuse helps us understand the many forms it can take and
let's us know we are not alone.
These stories are all true. We thank those who bravely told their story in the hope that they will help others who are being abused. We invite you to share your own story HERE.
Nancy's Story
I’m a very rare chronic illness warrior, a fierce advocate, and I have been in my nursing home since 2019. I will likely end up a tragedy at the pace and dangerously insidious manner in which retribution, neglect, and attrition for my advocacy and asserting and protecting residents rights (especially from illegal unsafe discharges and evictions, harm, or worse) is carried out 24/7 by leadership and most of my direct care staff, lawyers representing the nursing home, risk mitigation director, CFO, owners, corporate headquarters social service director, medical director, and HR, all the way down to maintenance, dietary, activities, and housekeeping managers, Director of Staff Development (groomer for shady practices and shortcuts, and cover ups), business office, medical records office manager and staff, and all of the receptionists, and Social Services. Directors of Social Services both here and at the corporate level are responsible for much of the day to day directing of harms and placating and deceit to keep residents submissive and silenced. It’s more than I can share so I’ll bring it to the present, this past week my belongings were boxed up and moved outside near the dumpster along with my personal furniture and it’s contents. Much of my belongings were thrown into the dumpster. I was tricked into going outside, then locked out where I spent the night. My medi-caid number was sold to a third party contractor (who has fraudulently billed Medi-Cal and me) by the medical director, had false diagnosis added to my medical records…again; and deleted these false diagnosis from my record. I don’t know that medical records are supposed to be altered or deleted, but I do know I’d like it to stop happening because it causes so much unnecessary trauma and hinders my ability to live freely and free from harms way, The nursing home chemically restrains residents so they cannot speak up to give any witness testimony and to isolate residents. They threaten anyone who they aren’t drugging with immediate discharge or discontinued health coverage; the Administrator told everyone they may not leave the facility alone at all…ever, and no one may leave for more than 4 hours and must have facility Drs approval written into the residents’ careplan, charts, and also submitted into the nursing home computer system. No one is allowed on a bus. Full stop, The exhaust tubing that blows very hot air, debris, and decades old build up of nursing home pollution dust and desert sand from portable A.C unit was pulled off of my room window joint to face me and my bed 24/7. I was not allowed access to my own closet and belongings for 7 months until I called the sheriffs dept, who then only took the word of the facility leadership and staff. The managers and staff have become the fall guys for the administrators and no one at all is taking any responsibility even though they’ve been heard stating “I know it’s wrong but what can I do, my bosses always retaliate. For instance, it’s common practice here to restrict residents movement by drugging and tilting them head down at a 45 degree angle for 4+ hours, which can cause death from cranial pressure. After a nurse was heard stating she knows it’s wrong but they’re taught to do that by DSD and supervisors in order to stop them from trying to get up at nighttime, the nurse said she knows it can kill people but can continue to do this tilting practice as can her CNAs under low blood pressure diagnosis. Luckily there are several open fraud investigations here at my facility. Also, there are plenty of witness statements. Also, these walls have ears, but it’s not only the facility that has ears anymore. That’s only a couple days of this past week. Imagine nearly 7 years of retaliation daily and strategically planned ways to force me out of my home where I receive necessary care? I didn’t even mention the cover ups and back stories that include falsified medical records and false documents, causing me to get sick, not allowing me to get to drs by intentionally not scheduling transportation to Dr appointments, refusal to assist with maintenance requests ie a new clean portable a.c., medications and e-kit not being filled, being given other people’s medications, monitoring and collecting restricted data and PHI and breaking privacy laws over company owned residents’, Visitors, and vendors public WiFi in order to have advantage for facility and corporation so they can CYA, to avoid scrutiny. Communications are deleted but never actually deleted. It’s time that digital forensics be done annually and not just during court orders. Why don’t residents hav3 an option to wear a wire inside nursing homes in common areas and with leadership who are directing all these harms and retaliation?
Jonathan's Story
My story is different because of how we kept mom out a facility. I was already
talking to them and filling out applications in 2023. Then in August my mom
started TB006 because my brother became the first IRB-approved physician
in the FDA-approved Expanded Access Program. He is Dr. William Gael in NYC.
In three days after the first dose, mom said it felt like a cloud had lifted. After
four monthly doses, she started doing alterations at her sewing machine. So
I'm just about the luckiest caregiver in the world because mom still lives alone...
She care for herself and her cognitive is all there. So aside from getting my mom
back, I also told my brother to introduce me to the company that makes TB006
because mom doesn't need me everyday anymore. I just had my two year work
anniversary last December.
...So now I'm on a mission to get more caregivers a result like mine, and part of that
is just keeping the elderly in the home they want to live in for as long as possible.
I just uploaded two shots from the A4M conference at the JW Marriott-Downtown LA.
I can't send the video of his presentation because other patients are shown and that
would be a huge HIPPA violation. As you can imagine, he got a little overwhelmed with his
recovered mom in the audience watching him present her among his cases.
Not only did she dress and meet the Uber I sent on her own, but she also came
to dinner after the show. The next day, everyone in our group was talking
about the goodbye phase you always have when everyone is standing near
the host stand saying goodnight to each other. That's when mom said, "Oh, I
have to say goodnight to my new friends from Colorado." referring to my boss
and his wife. Apparently, everyone was blown away because she had only just
met them an hour earlier, proving that her short term memory was fine. Funny,
because it would not have even impressed me because I'm with her all the
time.
Rainy's Story
Hello, I want to let you know how much your documentary resignated with me. Susie, I am 35, almost and a former Resident Care Coordinator. I worked in a local Ohio ICF facility. Where I supported, and cared for some of the most sweetest, misunderstood, vulnerable, and just amazing individuals. Individuals who were placed in this facility due to developmental disability. Here in Ohio the Obudsman is not even able to advocate for the these individuals. Due too that advocacy being placed at the door of county Department of Disability, and State Department of Disability. CMS still goes in and surveys and give them a check mark though the neglect and abuse is clear. The Ohio Department of Health and Human Services has found non compliance of so many state regulations. From residents being stripped of dignity, made to urinate in their wheelchair on a depends. When they have complete ability to use the toilet. The RCC just didn't want to take the time to lift the resident appropriatly. My co-advocate has a uncle who has suffered with so many bed sores. The ODH placed in their survey that the Adminstrator and Director of nursing knew of no wound care specialist that was suppose to assess the sores. Also they had no proper training. Latest news. Was this poor man 71 years old, had a g-tube misplacement where one of the nurses place the peg tube at a 8cm depth 5 more cm than the 3 that the physician ordered. This blocked off his lower intestine causing blood bile and stomach contents to come up through esophagus. For 3 days this went on. Until he went the hospital, just find that a nurse after the insert was wrong still did not check placement, but blew up the balloon more. This just caused those worsened problems. Though this all happened and we have also my co-advocate and I have contacted the DODD, Corporate, CMS, the OAG, and the governors office. We have come to see just what you out on that documentary.
Susie, I am going to school for social work. Because I have rocked the boat, and I left as an RCC in April due to my co-worker being fired because her another RCC witnessed a senior employee male, in bed with a female resident and smacking the female naked bum. The Admin, hid the situation by firing the reporters and then telling the authorities, there was no malicious intent. That this man was often the only one who could get this individual out of bed. With no wondering or question about what that was. This was covered up entirely.
If you can point me in any direction of national advocacy groups, I would love to be apart of the voice. Also I am not longer aloud to visit my adult friends who I care so much for. Though this is restricting their rights. Nothing is done I mean nothing. Its very sad!
You reached me so well with this Doc. Thank you thank you.
~ Rainy *****; November 12, 2025
Lisa B's Story
My dad was in three different memory care facilities in a mere 9 months. The first one was terrible, with staff and a director who clearly knew little about dealing with late-moderate stage Alzheimer's. My dad soon developed agitation (which he hadn't had previously) and their response was to send him to a geri-psych unit to dope him up. That's when we moved him to the second place. Staff was kinder, but the hygiene was severely lacking. A fall that broke 9 ribs sent him to the hospital and rehab, and during those 4 weeks, a room opened up at the facility that had been our #1 choice all along. We excitedly moved him there, thinking he'd live out the rest of his days with compassionate care. By the second day, a nurse was already responding to him with negative tones. On his sixth night there, our video camera captured him falling out of bed around 3 am. He lay on the cold, hard floor for a half-hour before a CNA discovered. Without attending to see if he was hurt (he was still nursing 9 broken ribs!), she summoned the nurse -- that same one who clearly didn't like him. My dad continued to lie on that floor for about 20 minutes -- no pillow or blanket offered -- while the nurse and CNA mocked him and spoke harshly to and about him! A third staff member finally came and they placed my dad awkwardly on the bed at a diagonal angle, legs dangling off the side of the bed; and he lay that way alone until the EMTs came 20 minutes later! When we confronted the facility director about this abuse, we were assured that the nurse would be reprimanded. My dad went from there to the hospital and then a SNF, where he died within a week. I contacted the board in charge of the abusive facility, and one of the board members facilitated a call between that horrible nurse (who was still working there) and me. Not only did that nurse not offer condolences for my father's passing, but her "apology" was followed by her justification, saying "He had slapped his pills out of my hand earlier that day."
Stephanie's Story
I am a ROARior because the whole country needs to address the way our culture "deals with" the elderly! They are not expendable! They are not disposable! They are our living ancestors, and we MUST protect them!!!
Below is my story as posted on the front page of a three-page cover story of the Sarasota Herald Tribune.
A few days every week, Stephanie Sifrit finds herself standing on the sidewalk along the 6000 block of Cortez Road in Bradenton waving signs outside a short-term rehabilitation center as cars zoom past.
The signs convey varying messages like "We need law now, yes to cameras," while the other side lists a Manatee County civil court case number along with the words: "86-year-old sexually assaulted, need cameras now."
Sifrit is advocating to have a law passed in Florida that would give families and guardians the right to place video cameras inside the rooms of their elderly and cognitively impaired loved ones living in nursing homes and assisted living facilities to help prevent elder abuse.
"I'm here to be an advocate for patients who cannot tell someone that they were physically touched or handled or mishandled," Sifrit said.
For Sifrit, the cause is personal.
In 2021, her 86-year-old mother, Janet Smith, lived at Bradenton Health Care for a month between Feb. 15 and March 11 following a brief stint at a local hospital, according to Sifrit and court records in a civil lawsuit she filed against the facility.
The lawsuit alleges that around March 4, Smith suffered unexplained and severe bruising to her private areas, as well as internal trauma that was later discovered during a visual pelvic exam. Smith also suffered bruising and swelling to her right temple, forearm and other parts of her body.
At the time, the facility's staff told Sifrit and her father, Smith's husband, that Smith had "self-reported a fall during the night.”
Sifrit said in an email that her mother had endured dementia and Alzheimer's disease since 2012 that was so severe at the time that Smith didn't know who she was and couldn't remember what had happened two minutes earlier, let alone what happened hours prior.
Sifrit said she had wanted to place a camera in the room initially and even called ahead of her mother's stay about it, but was denied three separate times by the facility's staff.
When Sifrit tried to bring her mother home early, she was told she would need to pay a $6,000 self-pay bill, as her mother's stay at the facility was mandated as part of her rehab following her hospital stay.
While the facility was known as Bradenton Health Care while Sifrit's mom was there, it has since changed its name to Aspire at Palma Sola Bay. The organization named in the lawsuit is 6305 Cortez Road West Operations, LLC, which was doing business as Bradenton Health Care.
The business 6305 Cortex Road West Operations, LLC remains as an active entity on according to state business records on the site SunBiz, and its principal address is listed as 6305 Cortez Road W.
The Herald-Tribune left a message at the office of the facility's attorney, Antonio A. Cifuentes, seeking comment but no response was received by the time of publication.
"Defense counsel in this instance forced the plaintiff into a pre-suit mediation given the seriousness of the allegation and defense counsel's pre-suit investigation showing no confirmation on the part of law enforcement, DCF or physicians of the alleged assault," court records from the defense said.
Additionally, the defense said in response to the lawsuit that Sifrit's counsel does not understand the significance of insurance coverage under the facility's general liability policy, according to court records.
"Not satisfied with the information she has been provided on insurance coverage, plaintiff's counsel is now inappropriately using this Court to amplify her attempts to harass and intimidate this defendant on matters related to insurance coverage," court records from the defense said.
Elder abuse under-reported
Elder abuse isn't as uncommon as many might think. According to the Area Agency on Aging for Southwest Florida's website, it's estimated that one in 10 Americans over the age of 60 have experienced some form of elder abuse, but only one out of every 14 cases of abuse is reported.
Sarah Gualco, director of programs and planning with the Area Agency on Aging for Southwest Florida, said that those numbers are most likely higher now since the statistics are from 2018 and there has been an increase in the 60-and-over population since that time.
Michael Brevda, a managing partner at Senior Justice Law Firm, which solely focuses on elder abuse and neglect lawsuits and accepts hundreds of cases annually, said for families who don't live in the same area, having a camera in their loved one's room could grant peace of mind.
"In Florida, most nursing homes refused to allow that, [yet some do] and the claim is that it might violate HIPAA by filming another patient or it would violate the privacy of the staff," Brevda said.
Brevda explained a simple solution would be to have facilities ask staff to sign a consent form upon hiring and acknowledge that there will be cameras in the rooms. The form could also be a way to address Florida's two-party consent law, which states that all parties must give consent before being recorded.
Brevda added that as long as the camera is visible and only pointing at the resident's bed and doesn't capture other residents or private areas such as bathrooms, he doesn't see the harm in a camera being used.
It's also an extra set of eyes to watch vulnerable patients, Brevda said, with families able to check in throughout the day and night to see what's going on with their loved ones.
"I think it's worth mentioning that too often when we prosecute a nursing negligence case here in Florida the records are either suspiciously silent as to what happened to the resident, or they directly contradict what other records state," Brevda said.
Placing a camera in a patient's room could not only help families with neglect or abuse cases, but it could also be a preventative measure.
Added safety
Sifrit added that while her father was in Brookdale Pointe West, a long-term care facility in Bradenton, there was a camera in his room that caught him tripping over his oxygen cord. Sifrit was able to alert staff to his fall and have peace of mind in knowing that the injury wasn't caused by mistreatment.
"On the other hand, the cameras don't only, you know, catch bad people doing bad things, cameras can help others support the facility if something comes up," Sifirt said. "Working in those facilities is extremely demanding and they can’t be there in every room to monitor everything."
Following Smith's traumatic experience, Sifrit moved her mom to Brookdale Pointe West, where she could have a monitoring device in her mom's room. Her mother would stay there until her death on March 2, 2022.
Brookdale Senior Living is one of the country's largest senior housing operators with over 60,000 residents and over 670 communities across 41 states.
“Brookdale Senior Living allows residents and/or their legal representatives the use of electronic monitoring devices in accordance with Brookdale policy and in compliance with State law," a Brookdale spokesperson said.
John O'Sullivan, executive director at Brookdale Gardens, said that his facility authorizes camera monitors inside rooms, but voice monitoring isn't allowed due to federal health privacy regulations. Brookdale Gardens and Brookdale Pointe West are two different long-term care facilities in Bradenton owned by Brookdale Senior Living.
The usage of cameras in the 120-bed facility is common, O'Sullivan added. For many families, the camera usage is not only to monitor the safety of their loved ones but also to connect with them virtually through video calls.
A 2019 study from the University of Washington surveyed 273 staff members from nursing home facilities across 39 states on the perceived risks and benefits of in-room cameras.
Of the 273 staff members surveyed, 172 wrote that the privacy of residents would be inappropriately invaded, and many extended those concerns to roommates, staff and visitors. This referenced intimate activities including bathing and using the bathroom.
Thirty-two respondents said that the use of cameras on staff had the potential to demoralize, offend, stress and show a lack of confidence in staff.
“Respondents noted that such invasion of privacy undermines a home-like experience, and others likened it to processes of institutionalization,” the study said.
While the policies of implementing camera monitoring devices vary from state to state and even facility to facility, O'Sullivan said that he hasn't received any complaints from his staff regarding cameras and that residents need to consent to the camera usage. If a resident is cognitively impaired, the power of attorney document would allow a designated individual to make those decisions on the resident's behalf.
The most commonly raised advantage in the study by 111 respondents was the use of cameras to deter abuse or determine the truth in abuse or theft allegations.
In Florida, agencies like the Florida Department of Aging Affairs, Area Agencies on Aging, and Adult Protective services under the Florida Department of Children and Families work to help prevent elder abuse or investigate when it occurs.
Gualco said the Area Agency's role is to help educate seniors and caregivers about the different areas of elder abuse, demonstrate preventative measures against the abuse and also try to help seniors remain at home for as long as possible. Gualco explained that there are five commonly identified areas of abuse which include physical, emotional or psychological, financial, sexual and neglect.
Other states allow cameras in nursing homes
Sifrit's efforts to pass the bill are aimed at preventing others from having to go through what her family has gone through.
She's also not alone in her efforts. Similar laws allowing cameras in nursing homes have been passed in nine other states, including Illinois, Kansas, Louisiana, Minnesota, New Mexico, Oklahoma, Texas and Washington.
In Ohio, Steve Piskor was successful in getting Esther's Law passed in 2022. The law, named for his mother who had Alzheimer's disease, went into effect almost a decade after Piskor placed a hidden camera in his 78-year-old mother's nursing home room in 2011 capturing proof that she was being physically abused by staff. Two nurse assistants ultimately ended up pleading guilty to the abuse, according to reporting by CantonRep.com.
Esther's Law requires that nursing homes and assisted living facilities allow the families of patients to place monitoring devices, either video cameras, audio recorders or both, in their loved one's room.
Piskor also echoed the sentiment that the cameras aren't supposed to be used for "I gotcha moments" but rather as preventative measures to stop abuse from happening. He is all for facilities informing employees of the cameras by placing signs up warning them there are cameras recording in certain rooms.
Now, the 68-year-old retiree works on helping other advocates in different states to get similar laws passed. He's currently helping advocates in Wisconsin and Sifrit in Florida. He said the key to getting laws passed despite opposition is to know all the details to answer any questions from the opposition about what you're hoping to get passed and applicable privacy laws.
The hope is that one day there will be a federal law so that all states allow families the right to place cameras.
Sifrit has met with Manatee County Republican state lawmakers Sen. Jim Boyd and Rep. Will Robinson, the chair of the Florida House of Representatives’ Civil Justice Subcommittee, about the usage of monitoring devices in long-term care facilities. She said that they were both compassionate, understanding and sympathetic to her experience.
Sifrit pointed out that Florida was on the path toward passing a measure similar to Esther's Law last year with SB 1486 which was sponsored by Florida Senator Travis Hutson, but the bill died in the Health Policy Committee in May 2023.
If it had passed, it would have authorized residents or their representatives to install and use an electronic monitoring device in the resident's room in long-term care facilities and would have prohibited facilities from denying a person that right, discharging them or otherwise discriminating or retaliating against the resident for installing a camera, according to the bill's description. It would also have provided a criminal penalty for unlawfully obstructing, tampering with or destroying the monitoring device.
"I cannot rest until facilities that house cognitively impaired patients have given the undeniable right to the family, to the caretaker, the healthcare surrogate to have a watchful eye over them [the residents]," Sifrit said.
Lisa's Story
My mother’s name was Linda Sestito. She entered Magnolia Manor in Columbus Georgia for a hip replacement and never made it out alive. She was just 69 years young. Mom had 4 falls during her time at this facility. After fall number three she was found unresponsive in her wheelchair the next morning and sent to er. Staff did not tell hospital about her fall. During this hospital stay they determined mom needed neck surgery. She was returned to Magnolia Manor to await this procedure. During this time she had fall number four from her wheelchair. Nurses heard her screaming from her room, entered and found her laying on the floor at the foot of her bed. They picked her up, looked her over, and out her in bed. I received a voicemail saying she had fallen but did not hit her head and was not injured in any way. Even though mom was awaiting neck surgery and was on blood thinners they did not send her to the er to be checked out. That night nursing notes show Mom was screaming 8/10 neck pain. Still not sent to Dr just medicated. This continued until 4 days after her fall when Mom began screaming and crying she couldn’t see, was unable to sit up in the bed, started saying things that didn’t make sense.. this was all documented and ignored for hours. Finally Mom had a full blown seizure, became unable to formulate words, and went blind. The nurse called a NON emergency transport for a “sick” person and again denied any falls. Doctors in the hospital spent days trying to figure out why she was bleeding into her brain. Mom never spoke again. Mom suffered a horrible death screaming blindly for 14 long torturous days until she suffocated on end of life secretions. All of this is documented in her medical records, voicemails, transport calls, and hospital forms. The photos of her feet show the level of care she was receiving. These pictures were taken when she was in the hospital. I reported her death and neglect to the state, the attorney general, the local police department, the city council, the congressman, the mayor , and the ombudsman. Nothing was done and no one was ever held accountable. Mom died 5/31/2021. I started an advocacy group on Facebook called Magnolia Manor Georgia Victims Fighting for Change after discovering mom was not their first victim. All documents and medical records can be seen in my group, along with hundreds of horror stories from other employees, and victims of this facility.
Tracy's Story
On October 8, 2025, my dad ******* was admitted to ******** (a) Rehab and Nursing Center here in Richmond VA, for physical therapy. It was supposed to be a two-week therapy, our visits were good and the nurses knew who we were. However, On October 13th at 2:00 AM we received a call saying my dad was going to the hospital for vomiting. Up until then we never received any calls. upon arriving at the emergency room, we were told no one had arrived yet, which I thought was strange because **** it was right around the corner. I decided to call ***** (the facilty) about the situation
At that moment, his nurse stated, “Mr. ***** had a heart attack and didn’t make it.” No feeling, no sympathy, just a cold statement. At that moment, I had the hard job of telling my mother, who screamed so loud that people came running from the back of the hospital. The hospital went and got the clergy, so I consoled my mother. My mother and I were left in shock, and as the days passed, I was suspicious of the circumstances around what happened. I called ***** (the facility) and requested a meeting with the administrator and director of nursing. I was very careful not to let them know that I was a nursing assistant and that I knew all their nursing lingo. During the meeting, they proceeded to say that my dad started vomiting earlier that day, However, we did not receive a phone call. They went on to say that he had projectile vomiting, that is how he ended up on the floor. as they answered my questions, I was convinced that something wasn’t right. As my mother and I left the building, I immediately started seeking legal counsel, requesting records, as well as the ambulance report.
According to the ambulance report, when they arrived, they found my dad face down on the floor in his room covered in stool on his chest. The EMT performed CPR but could not save him. According to the nurse’s notes, my dad had vomited foul stool several times and complained to the nurses about stomach pain. We received no phone calls. During the investigation by Virginia Department of Health, it was found that the nurses stated they did not do an assessment because my dad was still able to talk and that he looked fine to them. Virginia Department of Health failed to recommend a monetary fine against ***** the Rehab and Nursing Center, instead they were given a five-day plan of correction relating to other residents, not my dad. I reached out to The Center for Medicare and Medicaid Services about this decision, and was sent a letter from **** ( a rep for) CMS Certificate and Enforcement stating that a monetary penalty was not recommended because **** (the facility's) surveys were in good standing in previous years. In her letter, **** (she) stated that on September 23rd, 2016, now more stringent policies were made to the state operations manual, chapter seven survey and enforcement process for skilled nursing facilities regarding the criteria, for no opportunity to correct if harm is proven. My response to this was “Too little, too late. It was found that five days later, after my dad passed, ***** (the facility) was still changing his records this was reported to me from the inspectors and when asked **** (the facility) about it they could not offer an exclamation.
Out of this tragedy I Cofounded Justice and Change for Victims of Nursing Facilities Organization. I wanted to make sure that other families would not have to suffer. We support families as they navigate the journey of having a loved one in a nursing facility through Education, Advocacy and Resources. We provide families the tools to understand their rights, ask the right questions and feel empowered when dealing with the nursing home industry We also advocate for systemic change and accountability within our government. It is heartbreaking to see that families are still suffering. It is my sincere prayer that out of this tragedy, one day we will see where nursing facility residents are valued and not just put away and treated like they are nothing.
Family upset after man vomited stool but 911 wasn’t called for hours
Amanda's Story
I am writing to share the heartbreaking truth of what I witnessed my mother, Nannette F. Long, endure at the hands of the healthcare system. As her daughter and primary caregiver, I personally observed a devastating pattern of medical neglect, abuse, and systemic failure that contributed directly to her suffering and, ultimately, her death. What I saw no patient or family should ever have to experience—and I am speaking out now to demand accountability, transparency, and change. Looking back, it is painful to recount everything she went through, but remaining silent would mean allowing injustice to go unchallenged. My mother mattered. Her story deserves to be heard.
My mother’s story starts out in Northern manor, a rehab center in nanuet Ny. She was sent there following a surgery for short term care by Westchester Hospital. She had a picc line left in her arm for months with no care. I was shown a stage 3/4 bedsore with multiple open sores. She had no bed rails which resulted in a fall breaking her wrist during at least one of her falls. Around October 1st 2023 Which she received no treatment for. They hacked off all of her beautiful hair January 17 2023. It took me 12 hours to get her sent for an evaluation. I have video proof of this facility heavily violating patients rights. Including video of non staff carrying and playing musical instruments from 9pm till 1 am in the patients day room. Also of them behind the front security desk trying to let themselves out and getting caught doing so with no consequences. I have extensive videos, pictures, paperwork, medical records, witnesses, voicemails, and nurses. I also made multiple reports to the justice and DOH center called the senate in my area testimony. I also started a petition to get the first 3 facilities investigated. I have 879 signatures so far.
She was brought to Westchester hospital for care. They were pissed I brought her there and yelled at me for bringing her . A photo that was taken of her vitals at 3 am showed her critical condition and proof she should have been in the ICU and was clear Cariogenic shock. 54/32 (40). She was admitted for a plural effusion and heart failure. I was also told her wrist was broken and healed with out treatment and that she needed a specialist. They tested the fluid in her plural effusion on day 2/3 and then started saying she was fine and ready for discharge. She wanted to go home. She was completely coherent and marked as such in her medical records which also stated nursing home abuse. We fought to go home for 10 days in total before she was forced out against her will into another nursing home. During this fight I was told by a male supervisor that “ he was pissed off about my moms situation and was going to the nursing home to find out what happened as Westchester and northern manor are partners and send a lot of patients there. Also while going through her medical records my mom was confirmed to have CRE and VRE two hospital acquired infections that are highly dangerous and required isolation and strong antibiotics. She also had C- diff and sepsis. We were never notified about these infections and they remain in her records till the end. Westchester forced her out against her will while completely coherent. My research says she was medically kidnapped .
On May 28th 2024 she was forced into fishkill nursing home center in beacon NY. I followed her there and help get everything set up and told them everything going on. I was promised help. I left when visiting hours were over not wanting to as I had a horrible gut feeling. At 4 am the next morning my mom called me and said “Amanda they woke me up when I was already asleep and made me take another Percocet and Xanax but I was already asleep. I feel like something is wrong . I just woke up to my oxygen tank being empty suffocating in my sleep I barely made it” I called the facility multiple times and was ignored. I finally spoke to a nurse through my mom’s personal cell and she confirmed what my mom had told me. I couldn’t sleep so I got ready and showed up as early as I could . While speaking to my mom’s temporary case worker my mom fell asleep. I left her a note at 12:12pm and stepped outside to make calls. I went back up to her room about 45 minutes later. Her doors were closed so I waited about 15 minutes to be let in. Immediately upon entering I noticed my mom was in serious distress. Her arms were flying all over, her eyes kept rolling back, her lips were blue and pursed. I ask WTH was going on they said they didn’t know. I said did anyone check the oxygen tank? They checked it and it was empty again for the second time in just 8 hours. They argued with me that it was normal for her condition. I demanded a ambulance as it looked like an attempt on her life . Her heart rate was severely low and needed to be transferred to the nearest hospital.
She was next transferred to St Luke’s Cornwall Hospital in Newburgh , NY. She was admitted immediately for a dangerously low heart rate severe, dehydration, Cariogenic shock, suspected infection, and a blood clot in her lung. She was placed in the ICU. I have recordings of what her ER doctor and ICU team said. I was told the right side of her heart was so swollen they couldn’t see the left. She needed a ct scan to confirm suspected blood clots in her lung . She was allergic to the contrast eye so she is at risk for needing dialysis afterwards because her kidneys are only functioning at 45%. I had to gown up to see her. She had an angio-seal placed because of suspected blood clots. She almost didn’t pull through. She was then transported to another hospital at 2am on May 29th 2024.
Once transferred to Montefiore in the Bronx Einstein campus she remained in the CCU for 13 days. I had to continue to gown up for a few more days once transferred, but not more than a week. Here they took 17 liters of fluids from her body, confirmed northern manor withheld very important medications from her. She remained in this hospital until June 27, 2024 and was then finally sent home for care. She was diagnosed with a bunch of blockages in her right leg prior to coming home .
Finally are home!!! It took me almost a month to get her transportation and first doctor appointment set up. She was released confined to a stretcher not allowed to be transported in to a wheelchair. Medical transportation showed up not equipped 3 times. Finally I just paid 500 for her ride. They barely did anything just set up a bunch of tests and took bloodwork. I was told to call Northern Manor at this point and ask for her medical records to be sent over while I did this. I looked up Northern manors website on Google and found that it had been completely removed off of Google removing all of the reviews. Luckily, I had the phone number stored in my other phone. I got it for my boyfriend and called. I was told they needed prior authorization or approval to send over my mom’s medical records to her doctors. I stated that to my mom’s doctor and she said that was very weird. She was sent home unsure of what to do next .
On July 29th was her first admission in to Garnett since being sent to the nursing home. Our hometown hospital. First admission they did their job second was the same except I got permission to film in my mom’s hospital room. I felt like sharing her story was very important . I hired a professional. The link is at the end of this email. I have not posted it online yet. On the 3rd admission, 2 days after recording a doc appointment on September 3, 2024. In which I am told at least 5 times to Bring her in for IV diuretics because Ivy is always better than oral, and to watch for new symptoms as her cholesterol was triple what it was supposed to be.
On September 5th I called an ambulance. Her water retention was out of control and her toes had started turning black again. They tried to refuse her. I was told by her home care nurse to make them keep her and under no circumstances allow them to send her home without treatment. So I did exactly that. In the process they banned my phone and made me go through a lot of extra security often banging me all together for not going in the security room which only certain security guards would try and force me to do. I am disabled and asked them to accommodate my disabilities. I was ignored. They admitted my mom for observation of CHF but treated her for severe dehydration. They loaded her up with sodium and sent her home on September 8th in terrible condition. On September 10th I have on record her home care nurse saying she had stage 4 edema and that it was unheard of what she was getting out through. There was nothing in the hospital paperwork showing her severe fluid over load. She left my home saying she would testify in court if we made it there. I brought her back to her heart doctor on September 11th. She was told she had 5 serious problems. 1. Her heart was only functioning at less then 20% 2. She had stage 4 edema 3. Her toes were necrotic 4. Her plural effusion 5. She had a heart valve not closing allowing back flow at moderate damage and if it hit severe it would be to late . She was sent in an ambulance from her doctor appointment and remained until the 27th. She was admitted also from 10/02/24 till 10/06/24 10/10/24 till 10/17/24 10/26/24 till 11/4/24. I was able to get my phone unbanned before her last admission into Garnett.
During the last stay from 10/26 till 11/4 I recorded everything possible. After about 3 days she started getting shaky and her mind and sight started going. She was yelling out help and hello and not recognizing stuff she used on a daily basis. I strongly suspected an infection and I recorded myself begging for a comprehensive evaluation. I was told that my mom had no infections they checked everything. I asked for a repeat of the test westchester preformed before all of what followed. I was told not a doctor in the area would perform that test as it would collapse my mom’s lung. I asked what her chances of survival and how long . I was told she could live for years in this condition as long as her fluid retention was managed correctly as the medication (entresto) could literally rebuild her heart. They discharged her at midnight that night without any medication and without a diaper on in the freezing cold with barely a sheet covering her. Leaving the facility with an iv still in her so they had to go back and take it out. She was soaked from head to toe. Shivering! I had to call an ambulance and beg for her to be brought to a different facility. I was able to convince radiology to give me her x-ray disc for her last admission with the findings. It said that she had pneumonia, a partially collapsed lung, A worsening of her plural effusion between the three dates, and infection.
November 5th she was admitted into Bon Secures. I didn’t tell this hospital anything about prior incidents. I simply showed the the picture I have of the picc line that was in her arm when I found her. Based on that picture the doctor suggested the test I asked for which Garnett said no doctor would perform. The next vascular doctor said my mom needed a surgery and that she needed to be transferred again. I asked specifically if she was going to have a procedure or more testing. He said a procedure or her foot was at risk for amputation .
The next day she was transferred to Good Samaritan. As soon as she arrived she had more testing and I was told she didn’t need surgery for the same reason the other doctor said she needed it. I WAS PISSED!!! I started running my mouth about knowing about and infection she had because it was in the medical records for westchester and my mom had told me Garnett had found a UTI and never treated it. Good Samaritan found an infection and gave her antibiotics and her mental state was improving. She stated that I had saved her life again but I knew it was only temporary. I had to figure out how to get her back to Newburgh as they had saved her the first time . So at this point I made and appointment for November 13th and prayed she’d be sent home by then. Over the next few days I keep running my mouth because he heart rate was constantly dropping to the point of going unconscious. They had to flip her bed and make her blood rush to her head and upper body. She was severely anemic and required iron through IV . Then she had a severely low blood count and received 2 blood transfusions. The discharge paperwork confirms the CRE and VRE are still present They sent her home to me the next day. November 11th.
She was home for 2 days before she went to a doctor in Newburgh who sent her back to Newburgh hospital where she was immediately readmitted and place straight in the step down unit. I was glad to have her back in Newburgh but as time passed by that relief once again turned to panic. I came to visit late one night and walked in on her oxygen mask not being in her nose and she was going unconscious. I put it in her nose and ran and got a nurse and asked what she was not being monitored . She was not hooked up to where the alarms would go off at the front desk to alert to what I had walked in on. They started pressing me to get a DNA signed stating she only had a 5% chance of getting revived. I refused and explained them she deserved that 5% chance as this was not her fault. An hour after that call my mom went in to cardiac arrest. Her pulse rate was 132 for almost a week. They knew it was bound to happen. I don’t understand why she was not getting monitored. They were able to bring her back. She was placed in the ICU again and awaiting transfer once again.
This time she was Transferred to Montefiore but this time the Forman campus on November 26th. She remained in the CCU until December 4th. They were able to remove all of the fluids again and gave her a chance. The first few days were very scary she was not good they had to force oxygen into her. When she was finally awake and stable she told me the nurse who was taking care of her found her in the same state I found her in when I walked in on her being deprived of oxygen. She stated her oxygen fell out and sent her into cardiac arrest.
On December 4th she was moved to the step down unit. I helped transfer her. She was completely coherent and stable and doing good when I left. The next day after trying to call my mom all morning with no answer I called the hospital for an update. I was told she was really sleepy and had developed a slight white count . She was out of it all day . I called for multiple updates. The next morning I was told she had developed a very high white count over night and was not doing well. I got a call they might need to intubate her soon. A half hour later I got the call she had passed. I was devastated.
I did everything I was supposed to. Called everyone that I was supposed to call for help. Made reports to the department of health and I can see they received 8 violations but nobody will call and give me information. I had a lawyer when my mom was still alive but he dropped me because i wanted to go public . There is no amount of money in this world that could ever replace my mother. I cared for her after losing my father tragically made her very sick for over 20 years . My mom was able to walk entering that first nursing home and left unable to sit up on her own.
She was systematically denied the respect and humane treatment every person deserves. I believe I have enough evidence to prove she was pushed through the system and purposely deprived of the treatments she needed to sustain her life. There is a whole lot more I have evidence for and I really really need someone to let me share all of what I have with them. I see the system has failed your mother also. I understand the helplessness you feel when it becomes apparent nobody cares . My life will forever be affected by these events I’ve witnessed. I will never trust a doctor in my area again. This story needs to be shared but I have no help in my area. Please reach out to me so I can give u a full account of what happened. I have over 100 videos of everything that happened and everything I tried to do, called, 3 different police stations I reported it to. I have a lot. I need help please let me tell u everything and show you everything.
Sincerely,
Amanda Malone
See my documentary: https://vimeo.com/1008772799
Patricia's Story
I am a Healthcare Beautician Consultant. The level of care in nursing homes forces, vulnerable, elderly people to suffer, severe personal grooming, neglect with lack of bathing, Susie, I am going to school for social work. Because I have rocked the boat, and I left as an RCC in April due to my co-worker being fired because her another RCC witnessed a senior employee male, in bed with a female resident and smacking the female naked bum. The Admin, hid the situation by firing the reporters and then telling the authorities, there was no malicious intent. That this man was often the only one who could get this individual out of bed. With no wondering or question about what that was. This was covered up entirely.
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