

4 LTC
Respect Oversight Advocacy Reform
for Long Term Care
a 501(c)(3) nonprofit organization
Nancy's Story
Rancho Mirage CA

I’m a very rare chronic illness warrior, a fierce advocate, and I have been in my nursing home since 2019. I will likely end up a tragedy at the pace and dangerously insidious manner in which retribution, neglect, and attrition for my advocacy and asserting and protecting residents rights (especially from illegal unsafe discharges and evictions, harm, or worse) is carried out 24/7 by leadership and most of my direct care staff, lawyers representing the nursing home, risk mitigation director, CFO, owners, corporate headquarters social service director, medical director, and HR, all the way down to maintenance, dietary, activities, and housekeeping managers, Director of Staff Development (groomer for shady practices and shortcuts, and cover ups), business office, medical records office manager and staff, and all of the receptionists, and Social Services. Directors of Social Services both here and at the corporate level are responsible for much of the day to day directing of harms and placating and deceit to keep residents submissive and silenced. It’s more than I can share so I’ll bring it to the present, this past week my belongings were boxed up and moved outside near the dumpster along with my personal furniture and it’s contents. Much of my belongings were thrown into the dumpster. I was tricked into going outside, then locked out where I spent the night. My medi-caid number was sold to a third party contractor (who has fraudulently billed Medi-Cal and me) by the medical director, had false diagnosis added to my medical records…again; and deleted these false diagnosis from my record. I don’t know that medical records are supposed to be altered or deleted, but I do know I’d like it to stop happening because it causes so much unnecessary trauma and hinders my ability to live freely and free from harms way, The nursing home chemically restrains residents so they cannot speak up to give any witness testimony and to isolate residents. They threaten anyone who they aren’t drugging with immediate discharge or discontinued health coverage; the Administrator told everyone they may not leave the facility alone at all…ever, and no one may leave for more than 4 hours and must have facility Drs approval written into the residents’ careplan, charts, and also submitted into the nursing home computer system. No one is allowed on a bus. Full stop, The exhaust tubing that blows very hot air, debris, and decades old build up of nursing home pollution dust and desert sand from portable A.C unit was pulled off of my room window joint to face me and my bed 24/7. I was not allowed access to my own closet and belongings for 7 months until I called the sheriffs dept, who then only took the word of the facility leadership and staff. The managers and staff have become the fall guys for the administrators and no one at all is taking any responsibility even though they’ve been heard stating “I know it’s wrong but what can I do, my bosses always retaliate. For instance, it’s common practice here to restrict residents movement by drugging and tilting them head down at a 45 degree angle for 4+ hours, which can cause death from cranial pressure. After a nurse was heard stating she knows it’s wrong but they’re taught to do that by DSD and supervisors in order to stop them from trying to get up at nighttime, the nurse said she knows it can kill people but can continue to do this tilting practice as can her CNAs under low blood pressure diagnosis. Luckily there are several open fraud investigations here at my facility. Also, there are plenty of witness statements. Also, these walls have ears, but it’s not only the facility that has ears anymore. That’s only a couple days of this past week. Imagine nearly 7 years of retaliation daily and strategically planned ways to force me out of my home where I receive necessary care? I didn’t even mention the cover ups and back stories that include falsified medical records and false documents, causing me to get sick, not allowing me to get to drs by intentionally not scheduling transportation to Dr appointments, refusal to assist with maintenance requests ie a new clean portable a.c., medications and e-kit not being filled, being given other people’s medications, monitoring and collecting restricted data and PHI and breaking privacy laws over company owned residents’, Visitors, and vendors public WiFi in order to have advantage for facility and corporation so they can CYA, to avoid scrutiny. Communications are deleted but never actually deleted. It’s time that digital forensics be done annually and not just during court orders. Why don’t residents hav3 an option to wear a wire inside nursing homes in common areas and with leadership who are directing all these harms and retaliation?
UPDATE 4/26/2026:
Just an update from my previous share. The administrator told me that if I keep continuing to take short outings, advocacy or not, my insurance will stop my care immediately. I was told I’d be asked to leave if I left for more that 4 hours. CANHR has already written a letter to my facility reminding them that residents are not prisoners, that we can leave on outings. We do not have to have permission from one of their doctors.
Also, Today I got a visit from the Director of Staff Development who, btw, has never spoken to me other than to say to me p that he is in support of CNA and Nursing staff wearing meta glasses while working, providing care, and in front of PHI. (Meta glasses aren’t HIPPA compliant) The DSD came in to tell me that the Medical Director will be coming to give me another physical on the 30th of April. In such a short amount of time since the last one? Odd. I’ll keep you posted on what he tries to do to retaliate on behalf of the company this time and I’ll also keep you posted on how he plans to patient dump me this time. I’d also like to make mention of the multiple times I’ve had to go to medical records to tell them that what is on my medical record and under diagnoses is not accurate; only to be told by medical records that they will go ahead and delete after not being able to find any documentation of a dr who falsely diagnosed me nor any record of what nurse input the false and undocumented diagnoses. And one more thing…after my recent public speaking BHSA event, it is VERY VERY VERY common for nursing homes from west coast to east coast, including mine, to dump residents. There are too many tactics and deceptions, and bamboozling lies that are used on residents and their loved ones in order for the nursing homes to patient dump to list, but maybe we should start a list and make it public! We need you out for an hour for deep cleaning, we have to paint your room, your insurance isn’t covering your care here, you don’t qualify for our services, we don’t provide or offer that kind of rehabilitation for your broken hip, your insurance doesn’t cover what you need, we have to move you to a different room, and the list goes on. Many times it will happen on a Friday, and they tell people to be out before Monday am or pay out of pocket, when there is no one to even speak to at the residents insurance companies even if the resident knew to ask insurance directly. I don’t know why advocates say it’s rare, when it most certainly is not and has not been as long as I’ve been an advocate.