Amanda's Story

I am writing to share the heartbreaking truth of what I witnessed my mother, Nannette F. Long, endure at the hands of the healthcare system. As her daughter and primary caregiver, I personally observed a devastating pattern of medical neglect, abuse, and systemic failure that contributed directly to her suffering and, ultimately, her death. What I saw no patient or family should ever have to experience—and I am speaking out now to demand accountability, transparency, and change. Looking back, it is painful to recount everything she went through, but remaining silent would mean allowing injustice to go unchallenged. My mother mattered. Her story deserves to be heard.
My mother’s story starts out in Northern manor, a rehab center in nanuet Ny. She was sent there following a surgery for short term care by Westchester Hospital. She had a picc line left in her arm for months with no care. I was shown a stage 3/4 bedsore with multiple open sores. She had no bed rails which resulted in a fall breaking her wrist during at least one of her falls. Around October 1st 2023 Which she received no treatment for. They hacked off all of her beautiful hair January 17 2023. It took me 12 hours to get her sent for an evaluation. I have video proof of this facility heavily violating patients rights. Including video of non staff carrying and playing musical instruments from 9pm till 1 am in the patients day room. Also of them behind the front security desk trying to let themselves out and getting caught doing so with no consequences. I have extensive videos, pictures, paperwork, medical records, witnesses, voicemails, and nurses. I also made multiple reports to the justice and DOH center called the senate in my area testimony. I also started a petition to get the first 3 facilities investigated. I have 879 signatures so far.
She was brought to Westchester hospital for care. They were pissed I brought her there and yelled at me for bringing her . A photo that was taken of her vitals at 3 am showed her critical condition and proof she should have been in the ICU and was clear Cariogenic shock. 54/32 (40). She was admitted for a plural effusion and heart failure. I was also told her wrist was broken and healed with out treatment and that she needed a specialist. They tested the fluid in her plural effusion on day 2/3 and then started saying she was fine and ready for discharge. She wanted to go home. She was completely coherent and marked as such in her medical records which also stated nursing home abuse. We fought to go home for 10 days in total before she was forced out against her will into another nursing home. During this fight I was told by a male supervisor that “ he was pissed off about my moms situation and was going to the nursing home to find out what happened as Westchester and northern manor are partners and send a lot of patients there. Also while going through her medical records my mom was confirmed to have CRE and VRE two hospital acquired infections that are highly dangerous and required isolation and strong antibiotics. She also had C- diff and sepsis. We were never notified about these infections and they remain in her records till the end. Westchester forced her out against her will while completely coherent. My research says she was medically kidnapped .
On May 28th 2024 she was forced into fishkill nursing home center in beacon NY. I followed her there and help get everything set up and told them everything going on. I was promised help. I left when visiting hours were over not wanting to as I had a horrible gut feeling. At 4 am the next morning my mom called me and said “Amanda they woke me up when I was already asleep and made me take another Percocet and Xanax but I was already asleep. I feel like something is wrong . I just woke up to my oxygen tank being empty suffocating in my sleep I barely made it” I called the facility multiple times and was ignored. I finally spoke to a nurse through my mom’s personal cell and she confirmed what my mom had told me. I couldn’t sleep so I got ready and showed up as early as I could . While speaking to my mom’s temporary case worker my mom fell asleep. I left her a note at 12:12pm and stepped outside to make calls. I went back up to her room about 45 minutes later. Her doors were closed so I waited about 15 minutes to be let in. Immediately upon entering I noticed my mom was in serious distress. Her arms were flying all over, her eyes kept rolling back, her lips were blue and pursed. I ask WTH was going on they said they didn’t know. I said did anyone check the oxygen tank? They checked it and it was empty again for the second time in just 8 hours. They argued with me that it was normal for her condition. I demanded a ambulance as it looked like an attempt on her life . Her heart rate was severely low and needed to be transferred to the nearest hospital.
She was next transferred to St Luke’s Cornwall Hospital in Newburgh , NY. She was admitted immediately for a dangerously low heart rate severe, dehydration, Cariogenic shock, suspected infection, and a blood clot in her lung. She was placed in the ICU. I have recordings of what her ER doctor and ICU team said. I was told the right side of her heart was so swollen they couldn’t see the left. She needed a ct scan to confirm suspected blood clots in her lung . She was allergic to the contrast eye so she is at risk for needing dialysis afterwards because her kidneys are only functioning at 45%. I had to gown up to see her. She had an angio-seal placed because of suspected blood clots. She almost didn’t pull through. She was then transported to another hospital at 2am on May 29th 2024.
Once transferred to Montefiore in the Bronx Einstein campus she remained in the CCU for 13 days. I had to continue to gown up for a few more days once transferred, but not more than a week. Here they took 17 liters of fluids from her body, confirmed northern manor withheld very important medications from her. She remained in this hospital until June 27, 2024 and was then finally sent home for care. She was diagnosed with a bunch of blockages in her right leg prior to coming home .
Finally are home!!! It took me almost a month to get her transportation and first doctor appointment set up. She was released confined to a stretcher not allowed to be transported in to a wheelchair. Medical transportation showed up not equipped 3 times. Finally I just paid 500 for her ride. They barely did anything just set up a bunch of tests and took bloodwork. I was told to call Northern Manor at this point and ask for her medical records to be sent over while I did this. I looked up Northern manors website on Google and found that it had been completely removed off of Google removing all of the reviews. Luckily, I had the phone number stored in my other phone. I got it for my boyfriend and called. I was told they needed prior authorization or approval to send over my mom’s medical records to her doctors. I stated that to my mom’s doctor and she said that was very weird. She was sent home unsure of what to do next .
On July 29th was her first admission in to Garnett since being sent to the nursing home. Our hometown hospital. First admission they did their job second was the same except I got permission to film in my mom’s hospital room. I felt like sharing her story was very important . I hired a professional. The link is at the end of this email. I have not posted it online yet. On the 3rd admission, 2 days after recording a doc appointment on September 3, 2024. In which I am told at least 5 times to Bring her in for IV diuretics because Ivy is always better than oral, and to watch for new symptoms as her cholesterol was triple what it was supposed to be.
On September 5th I called an ambulance. Her water retention was out of control and her toes had started turning black again. They tried to refuse her. I was told by her home care nurse to make them keep her and under no circumstances allow them to send her home without treatment. So I did exactly that. In the process they banned my phone and made me go through a lot of extra security often banging me all together for not going in the security room which only certain security guards would try and force me to do. I am disabled and asked them to accommodate my disabilities. I was ignored. They admitted my mom for observation of CHF but treated her for severe dehydration. They loaded her up with sodium and sent her home on September 8th in terrible condition. On September 10th I have on record her home care nurse saying she had stage 4 edema and that it was unheard of what she was getting out through. There was nothing in the hospital paperwork showing her severe fluid over load. She left my home saying she would testify in court if we made it there. I brought her back to her heart doctor on September 11th. She was told she had 5 serious problems. 1. Her heart was only functioning at less then 20% 2. She had stage 4 edema 3. Her toes were necrotic 4. Her plural effusion 5. She had a heart valve not closing allowing back flow at moderate damage and if it hit severe it would be to late . She was sent in an ambulance from her doctor appointment and remained until the 27th. She was admitted also from 10/02/24 till 10/06/24 10/10/24 till 10/17/24 10/26/24 till 11/4/24. I was able to get my phone unbanned before her last admission into Garnett.
During the last stay from 10/26 till 11/4 I recorded everything possible. After about 3 days she started getting shaky and her mind and sight started going. She was yelling out help and hello and not recognizing stuff she used on a daily basis. I strongly suspected an infection and I recorded myself begging for a comprehensive evaluation. I was told that my mom had no infections they checked everything. I asked for a repeat of the test westchester preformed before all of what followed. I was told not a doctor in the area would perform that test as it would collapse my mom’s lung. I asked what her chances of survival and how long . I was told she could live for years in this condition as long as her fluid retention was managed correctly as the medication (entresto) could literally rebuild her heart. They discharged her at midnight that night without any medication and without a diaper on in the freezing cold with barely a sheet covering her. Leaving the facility with an iv still in her so they had to go back and take it out. She was soaked from head to toe. Shivering! I had to call an ambulance and beg for her to be brought to a different facility. I was able to convince radiology to give me her x-ray disc for her last admission with the findings. It said that she had pneumonia, a partially collapsed lung, A worsening of her plural effusion between the three dates, and infection.
November 5th she was admitted into Bon Secures. I didn’t tell this hospital anything about prior incidents. I simply showed the the picture I have of the picc line that was in her arm when I found her. Based on that picture the doctor suggested the test I asked for which Garnett said no doctor would perform. The next vascular doctor said my mom needed a surgery and that she needed to be transferred again. I asked specifically if she was going to have a procedure or more testing. He said a procedure or her foot was at risk for amputation .
The next day she was transferred to Good Samaritan. As soon as she arrived she had more testing and I was told she didn’t need surgery for the same reason the other doctor said she needed it. I WAS PISSED!!! I started running my mouth about knowing about and infection she had because it was in the medical records for westchester and my mom had told me Garnett had found a UTI and never treated it. Good Samaritan found an infection and gave her antibiotics and her mental state was improving. She stated that I had saved her life again but I knew it was only temporary. I had to figure out how to get her back to Newburgh as they had saved her the first time . So at this point I made and appointment for November 13th and prayed she’d be sent home by then. Over the next few days I keep running my mouth because he heart rate was constantly dropping to the point of going unconscious. They had to flip her bed and make her blood rush to her head and upper body. She was severely anemic and required iron through IV . Then she had a severely low blood count and received 2 blood transfusions. The discharge paperwork confirms the CRE and VRE are still present They sent her home to me the next day. November 11th.
She was home for 2 days before she went to a doctor in Newburgh who sent her back to Newburgh hospital where she was immediately readmitted and place straight in the step down unit. I was glad to have her back in Newburgh but as time passed by that relief once again turned to panic. I came to visit late one night and walked in on her oxygen mask not being in her nose and she was going unconscious. I put it in her nose and ran and got a nurse and asked what she was not being monitored . She was not hooked up to where the alarms would go off at the front desk to alert to what I had walked in on. They started pressing me to get a DNA signed stating she only had a 5% chance of getting revived. I refused and explained them she deserved that 5% chance as this was not her fault. An hour after that call my mom went in to cardiac arrest. Her pulse rate was 132 for almost a week. They knew it was bound to happen. I don’t understand why she was not getting monitored. They were able to bring her back. She was placed in the ICU again and awaiting transfer once again.
This time she was Transferred to Montefiore but this time the Forman campus on November 26th. She remained in the CCU until December 4th. They were able to remove all of the fluids again and gave her a chance. The first few days were very scary she was not good they had to force oxygen into her. When she was finally awake and stable she told me the nurse who was taking care of her found her in the same state I found her in when I walked in on her being deprived of oxygen. She stated her oxygen fell out and sent her into cardiac arrest.
On December 4th she was moved to the step down unit. I helped transfer her. She was completely coherent and stable and doing good when I left. The next day after trying to call my mom all morning with no answer I called the hospital for an update. I was told she was really sleepy and had developed a slight white count . She was out of it all day . I called for multiple updates. The next morning I was told she had developed a very high white count over night and was not doing well. I got a call they might need to intubate her soon. A half hour later I got the call she had passed. I was devastated.
I did everything I was supposed to. Called everyone that I was supposed to call for help. Made reports to the department of health and I can see they received 8 violations but nobody will call and give me information. I had a lawyer when my mom was still alive but he dropped me because i wanted to go public . There is no amount of money in this world that could ever replace my mother. I cared for her after losing my father tragically made her very sick for over 20 years . My mom was able to walk entering that first nursing home and left unable to sit up on her own.
She was systematically denied the respect and humane treatment every person deserves. I believe I have enough evidence to prove she was pushed through the system and purposely deprived of the treatments she needed to sustain her life. There is a whole lot more I have evidence for and I really really need someone to let me share all of what I have with them. I see the system has failed your mother also. I understand the helplessness you feel when it becomes apparent nobody cares . My life will forever be affected by these events I’ve witnessed. I will never trust a doctor in my area again. This story needs to be shared but I have no help in my area. Please reach out to me so I can give u a full account of what happened. I have over 100 videos of everything that happened and everything I tried to do, called, 3 different police stations I reported it to. I have a lot. I need help please let me tell u everything and show you everything.
Sincerely,
Amanda Malone

See my documentary: https://vimeo.com/1008772799